Friday 26 January 2018

Friday 26th January......Shopping bags, Constipated Dogs and Chemo

😒⛰🗽

Let's start with constipation, ( I was going to write "always a good opener".... and then realised my faux pas).

Last week I gave Jess and Beanie marrow bones to chew, they love them, but unfortunately Jess's digestive system is not so keen. She became more and more uncomfortable, and so we booked a trip to the vet, which involved a "SleepOver" and an x ray, and being put on a drip...

She come home with laxatives, painkillers and a rather large bill, love her. Just as well we do love her.
 Meanwhile, I of course had been around the entire house and garden clearing up all the leftover bones and disposing them in the bin, and could be found at various times in the day muttering quietly to myself a little mantra. "I am never giving Jessie another bone ever again".

Without going into too graphic detail, we spent the next few days examining and taking photos ( to show the vet obviously) of piles of excrement. It's a relief to report that she is, a week later back to her normal bodily functions.

Changing the subject totally, a very kind son , with the very best of intentions bought me a gift.

 No ordinary gift but  a complete set of very brightly coloured shopping bags.

Steady everyone, yes, you like me were wildly excited upon  hearing this news, there were four different sizes too, plus different capacities. My head was positively spinning.

Maybe my face or body language didn't show immediate ecstasy, or maybe I wasn't leaping around the kitchen with undisguised pure joy, I do believe I had a similar reaction to when another son bought me an ironing board for a  birthday present, but I digress.

Mustering up my best "grateful" face, I assured him I would use them, thanked him profusely and put them in the car, where they promptly got caught up in a tangle of other bags, dog leads and all the other 'just in case I need it' paraphernalia that lives in my car on a permanent basis. 

On the third trip to the supermarket I reluctantly thought I had better start using these bags, untangled them, got a trolley, then changed the trolley because I needed a larger one, immediately finding it  harder to push. Entered the supermarket, zapped my card realised I had the one large trolley in 400 that didn't have a holder to put the scanner.

Quietly cursed under my breath, then remembered that I'm being calm, and peaceful and balanced and generally a 'nicer' person, one that is pleased to be able to go to a large supermarket and shop, with brand new lovely big, colourful bags my son so generously bought me.

Three deep 'yoga' breaths later I set off, narrowly swerving around a lady choosing flowers.

It quickly became apparent that the new bags combined with my poor driving skills were a dangerous force, and I could in fact have gone to war and caused a fair amount of destruction in a short amount of time.

A major oversight of the bag manufacturer (in my humble opinion) was in wanting to have vast depths , these bags had to be balanced by having fitted  rather long handles that sat outside of the sides of the trolley, a bit like files in a cabinet, only these stuck out a long way.

Feeling very self conscious I gingerly maneuvered my way around the shop, and all went well for the first five minutes, but then as I was getting more into the task, I forgot that was in charge of a potentially dangerous vehicle.

Small children narrowly avoided having their vision seriously impaired, OAP's suffered inflictions such as sharp back and chest pains and  I got caught in the  yummy mummy's lycra 'activewear'.

As the whimpers and cries became more regular, so did my cries of "sorry" and "Oh I am sorry", and so did my haste to leave. By this point I was fairly swinging around the aisles, wiping out the odd can of beans and the in-store baked croissants.

Panting and red faced (not my usual look at the supermarket, more racquetball court), I arrived at the quick check out, clocked the scanner in, got asked the usual questions, in which one of the answers was no. My bagels were not recognised.

(Not an affliction that I regularly suffer from...)

An assistant was required, she came over cleared the screen, I started again, she went off , same thing happened, she came over cleared the screen, same thing happened. By this time she was becoming aware of the small army of disgruntled shoppers nursing injuries and pointing accusing fingers my way.

Realising that she needed to avert a potentially very nasty situation she almost threw the bagels in my trolley, and indicated that I needed to leave the shop immediately.

The saga of the shopping bags doesn't end there, believe me, it was a struggle to lift the now very heavy bags out of the trolley and into the car, and ditto when I got home.

Fortunately for them, no boys were around when I was unpacking the goods, as I wasn't in the best of moods, (cue more deep breathing and a cup of herbal tea).

Some hours later the 'son' came home.... and I regaled my shopping experience, stating very firmly that I was never, ever going to use those bags again. I have yet to go back to that shop.

Lastly chemo, that wasn't anywhere nearly as comical I'm afraid. I did however have a Brucie Bonus and not have any last week. Not because I didn't want it, but because my bloods were so low!

Not all doom and gloom though, managed to play a full game of netball, not brilliantly, but hey my opposition was only sixteen, a fact that my husband took great delight in telling me how many decades I was older than her, charming.

Also had a cheeky racquetball session, two nights of badminton, a yoga & zumba class, and a lovely game of tennis. Chuck in the odd dog walk or two, meeting up with friends and a quick lymph draining session, and that pretty much sums it up.

Had bloods taken this week on Tuesday, the port worked! They were, of course borderline, but we felt that we were good to go on Friday ( today).

Arriving at the hospital on time at 10am, the time I was definitely told to be there and no later ( so what's twenty minutes between friends? Anyway I took a box of chocolates and some satsumas as a peace offering!)plus is running late a form of exercise?

Miss Lovely Oncology nurse, after announcing to the entire ward my tardy time keeping, stuck me in the 'naughty corner' chair, (little did she know it was my favourite chair (two windows and sunshine!)

Despite previous blood tests, she felt we needed to have another one, (she knows me well), and guess what, this time the  port didn't work.... two attempts, still no blood was passing down that syringe.

So the arm got the needle instead, and the port got a good telling off and a mouth full of saline and another chemical infusion that I can't remember or even begin to spell.

My litre of fluid was given ( through the now remorseful port, we shall call him Parkin ( The name Parkin is an English baby name. In English the meaning of the name Parkin is:Little rock.) he looks a bit like a small pebble, and then the blood results came back. 

My doc wasn't there today so met up with the pleasant  Dr RS, he looked a bit concerned as he walked towards me, so not good news I thought. 

It was ok as I had a back up team ready (SW and Jack), and prepared myself. 

These are my current blood results, 

Hb 9.5 (normal range 12-15)
White cell count 1.6 (normal range 4.5-10.00)
Neutrophils 0.99 (minimum for chemo is 1, normal range 1.5-7.0) 
Platelets 115 (normal range 140-450)

Put it this way if I was in a race with those blood counts not only would I be last, I wouldn't have even made the sub bench. 

A five minute discussion, blood transfusions and GCS-F injections talked about, it was decided that I would go ahead with chemo, as I look and feel alright (!) , however I am now on antibiotics , purely preventive apparently, but with the proviso that I call immediately I start to feel unwell. 

Everything else went very smoothly, and I left the hospital with a date next Wednesday for another blood test. I was, it's true a little deflated as I thought that i could have managed a bit longer before becoming neutropenic, but as always every cloud has a silver lining, my CA125 has dropped again to 113, happy days. 

This blog post has taken me over three hours to write, with family interruptions, I apologise to those friends I owe emails too, I had intended to write them today but forgot my ipad (chemo brain?), and now I'm far too tired!

Finishing with a few quotes from my book..

Peter Kay

My Nan told me her friend had collapsed outside Waitrose. She said, "the ambulance men came and she wasn't breathing so they had to give her artificial insemination". 


“If you want the rainbow, you have to put up with the rain.”


― Dolly Parton




Steph and Rosie in the Gallery magazine....

 A small red haired hobbit from out west...



 Flowers in my garden!


 My girls enjoying the brief glimpse of sunshine in Gorey










Monday 15 January 2018

Blue Monday....

Firstly, thanks guys for the comments- I get them on email immediately they are posted , and I do appreciate thats its not easy to post/publish on the blog, and I also appreciate that not everyone likes to use the "open to all" way of communicating.

I'll start at the business end - and so far both the chemo and the port seem to be working well, I should have the chemical infusion of cisplatin on a weekly basis. I say should, as last week my blood counts had unsurprisingly dropped to a level that they would be questioning whether or not it they would be able to  go ahead.

Wisely the oncologist lowered the actual dose even more and it was given on Thursday, that seems to be my day now, but as I say things change every week.  I am also going into hospital to have a blood test pre chemo day, as if 'we' decide on the day that my bloods cant take it, the chemo will have already been made up and wasted- it's far too expensive to do that, despite my minimal dose.

Nausea seems to be the first real bothersome side effect, but of course there are tablets for that, which then cause constipation... and that's me on a very small dose, I'd hate to have the full whack of the stuff, this particular chemo is renowned for causing sickness. ( As a friend of mine had to have), but you have to think of this as 'medicine' and i do believe that even in minor doses it is working.

Not that we are actively following my CA125 count, which is just as well as it started way up at nearly 3,000 ( should be under 35 remember!) but it had dropped to 562, so as that is an inflammation marker it would seem to indicate that the tumours have been, at least halted.

I am due a blood test tomorrow at the hospital, to see whether I am viable for chemo this week, we talked about a blood transfusion as my haemoglobin is low at 9.4 , but as Dr B had 'assessed' me on the badminton court the week before ( we both play different clubs on same night), and thought if I can manage that, I shouldn't need a transfusion! We also talked about an injection of GCS-F ( boosts your white cell count) but I said it really knocks out your platelets and mine are already low at 98.

Moving on, today is, I heard on the radio Blue Monday, not that I pay that much attention as every day as far as I'm concerned is a bonus, but it's fair to say that it didn't start well! More of that later.

Bex has been struggling a lot over the past two weeks, initially she was managing her timetable very well, and even going back to work for a few hours a week. (They have been amazingly understanding, and incredibly accommodating, thank goodness). Not wanting to go into too much detail it has been a very difficult time for her and the family, but we are all communicating with the 'team' and issues are being resolved as they arise.

However last night she was really suffering with a sore tummy, this happens on a daily basis, and so not too unusual but then at around 3am she was very ill - and as the island seems to have a stomach bug going around I fear she may have unfortunately picked one up.

Not ideal for her , or for that matter any of us in the household. I am hoping its a twentyfour bug and not the norovirus that is also doing the rounds. Rest and plenty of fluids plus a bit of dry toast is my recommendation for the next few hours at least.

The weather has changed dramatically from the dry, sunny calm spell we have just had,  with gale force winds and rain forecast all this week, and everywhere is so wet already- it make dogs walks a real joy..... not!!


A past photo from a lovely weekend with family.
 You turn your back for a second and the cat takes full advantage of an open dishwasher....
 Snowdrops in our meadow.

Thursday 4 January 2018

Wednesday 3rd January 2018

Thought I was well overdue a blog post, so I am starting with wishing you all a very Happy New Year!

Thank you all for the emails. comments/ cards we all received over the Christmas period, so kind and much appreciated.

For those of you that don't live in the Parish/on the Island or have access to social media, I will start by saying we had a particularly busy, highly emotional ( well, me anyway... nothing new there then), Christmas!

Firstly we had the arrival of the "Mad Aunt", I use that phrase as a term of endearment, for all those who don't know me well and think I'm being disrespectful, ( which, theoretically I am.)

Her list of chores included, dog walking and gardening, baking macaroons, ironing, doing crosswords, cleaning the glass cupboard ( points scored over my sister with that one)  and generally getting in the way, ( some may say, 'being helpful', but as she does one job and creates three it's not always as productive as it might have been. Bless.

Into the mixing pot of the frenzy that is Christmas, our son and his fiance decided to bring their wedding forward, from this July to December 22nd- whoa.... surprise factor overload!

One of the reasons being they felt that while I'm fit and relatively healthy I would appreciate it more, (cue fresh tears!) . And so with three weeks to prepare they went ahead.

The Minister at St Martin's Chapel was amazing, as was the organist. The bride was beautiful, and the groom scrubbed up reasonably well too! We had a lovely simple, but very personal service, the chapel was decorated by two lovely ladies, and we had a small reception down in Rozel at the pub.
That room had been decorated by LLe S, and was incredible, my poor photography doesn't do it justice, but fortunately there was a 'proper photographer, plus MW who took pictures of Steph during the morning.

A very special thanks goes to the 'fire crew' two of whom collected Steph and her dad in the engine, and brought them to Chapel (luckily no 'shouts' on the way!) and took them to the pub!

By the time we got to Christmas day, it all felt a bit of an anticlimax! Even so our festivities continued through the week, and so lovely to be able to spend it all with family.

Not having chemo last week was a bonus, even though I had two hospital visits for a blood test. First one didn't work through the 'port', so they filled me with 'drain cleaner' (!) and I went back 24 hours later, where luckily it did work!

I have been back to hospital today, and despite all of the blood counts being on the low side, it was still deemed safe to go ahead with the chemo. Slight first attempt hiccup but soon sorted and everything went smoothly, whole process usually takes between 4-5 hours.

This pattern is usually followed by me coming home and sleeping/resting, I'm sure it's the anti-sickness that makes me so sleepy.

 A blowy dog walk!
 Christmas!!



Bex and I in our wedding attire!



I have been trying to upload wedding photos, but failing!!


Finally.... its now Thursday!!  Midnight!A few photos uploaded....

 ( The lovely Minister..


& Mr and Mrs Luce







Party room! 













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