I've been trying to find a youtube clip of the original series, in particular the theme tune and the Tardis spinning seemingly out of control.
A pretty good simile of how I'm feeling at the minute.
To continue from Monday evening, I stayed at the hospital on oxygen all night, and the next morning Dr KG came to see me before the MDT meeting. We chatted a bit, kind of prepared for bad news.
Dr NB came to see me post meeting, and explained as candidly as he could, that the team at the Marsden had viewed the scans and despite not having the full histology report said it was in fact cancer in the lung lining.
I also believe that in Ovarian cancer it often follows this path, ending up in the lungs. Not exactly lymph nodes but more of a tangle that leaks out cancerous fluid and is impairing my breathing.
They also said that i seemed to be platin (chemo drug) resistant, as i really only had a few weeks from stopping chemo before my CA125 was on the increase at a fairly rapid rate.
Posing more problems with me being BRCA2 and don't forget my bone marrow is suppressed, doesn't make for an easy care pathway. In their own words "I'm running out of options". I've been here before however last Summer, before they decided on weekly chemo of Cisplatin.
They have suggested I start weekly Taxol ( another chemo drug ) I have had it once before, It's a harsh drug, we will start small weekly doses first week of June. Lots of side effects, hair loss just being one of them, probably the least painful/debilitating one.
Ok.
So they left and then Steve came, I told him what they had said, and then we were allowed out of the hospital (good behavior) to grab a coffee in the park, in the sunshine.
Back in the hosptial and hooked up to the oxygen again, Dr KG came back in, and the first reports from histology were through , cancerous fluid in the lungs from pleural Effusions.
A pleural effusion is a buildup of extra fluid in the space between the lungs and the chest wall. ... Common causes of malignant pleural effusion are lymphoma and cancers of the breast, lung, and ovary. Although a malignant pleural effusion is treatable, it can be a serious, potentially life-threatening condition.
Lots of further discussions, treatment plans and how we are going to get me to the UK on Friday. I could do with oxygen at home (you need to be assessed before they will deliver to your home.)
I could do with oxygen on the flight in case i need it.
We left the hospital late afternoon after having picked up some low dosage steroid tablets, which I have started taking, this should help the inflammation. I'm also to carry on with the two lots of antibiotics.
Home, still coughing, maybe not so bad? Breathing , yes still breathing . Walked the girls slowly around the block with Steve, trying to get our heads around it all.
My goal posts have moved considerably closer, and fast. No netball...no tennis....no racquetball. Yoga? Pilates? probably can't at the minute, every organ in my body is having to work harder to compensate.
Things can't be good with me, if I've had to write four blogs in a week!
As I have not heard from the 'Oxygen" dept?? all day today, and am trying to contact flybe (very helpful lady) as you're supposed to apply to take it on flight 48 hours before, its been busy.
Tomorrow back to the hospital for an oxygen assessment ( why didn't they do it whilst I was there!), and fingers crossed all is well that I come home with oxygen.
Getting new oxygen from trees and plants??
Dr Who scared me too and I’m older than you! Sending love and everything positive, you keep fighting as only you can xxxx
ReplyDeleteDr Who traumatised me then and I wouldn’t watch it now-those daleks ! Sending you much love and hugs lovely friend xxx
ReplyDeleteI really don't know what to write, but feel I just want to let you know I am thinking of you and sending you lots of love. I really hope you get to the UK as planned. X
ReplyDeleteP.s. The daleks traumatised me too! Now when I see them, I just laugh as if I showed them to my kids I'm not sure they would be as bothered by them as they are so used to the higher spec/standard of special effects. Not sure if this is a good thing.
...barely old enough to remember those daleks you talk of Jill!? ☺ But I do. Gliding around, and their accompanying noises. They were almighty and strong . Talking of which, I am thinking of you lots and sending lots of love. A tough time right now I know . Hope you can get the oxygen sorted so that you're comfortable and all can be well for you to travel. And yes, hope your garden of beautiful wild flowers can flourish and contribute. Much love. Lxo
ReplyDeleteMy (younger) brother and I used to hide behind the settee when the daleks came on xx
ReplyDeleteLots of love xx