26th August

Not long after I posted the last blog, I had the call from my consultant. Its always best to hope for good news, but prepare for bad.

But I wasn't really prepared.

CA 125 has now risen to 585, thats nearly as high as when I was diagnosed five years ago.

My consultant will be away on Tuesday 29th but has organised an MDT meeting with the Royal Marsden, my old oncologist Dr H (who is back and covering for Dr NB) will put my 'case' forward.

Obviously KG is pleased that I am asymptomatic, feeling and looking well, but something is definitely not right. (understatement) She feels that it's wise not to go rushing into a CT scan when an overall PET scan might well be needed, and I don't want to have two scans back to back.

I cant deny it but I was upset, the blood markers being so high really shocked me. Initially dismayed, followed by anger, quickly replaced by resignation. Did I really think I had beaten it with a little bit of radiotherapy? Wake up Jill and smell the coffee.

Supposedly I will hear from our hospital on Tuesday regarding a treatment plan. Think that DR CM ( haematology ) would like me to have Chemo, he has a point, it was very effective last time, and if I do have multiple tumours you can't exactly keep blasting radiotherapy 'lasers' at them all.

Of course, with me having myelodysplasia (low white cells) it'll be a tricky business.  I could end up worse off (with Leukemia  ) or dead. Oh I'm glad I'm not in their shoes, decisions decisions.

I'm still incredibly grateful through it all, thank goodness there is some options left,  although I feel they are becoming fewer.



“She made broken look beautiful

and strong look invincible.
She walked with the Universe
on her shoulders and made it
look like a pair of wings.”

― Ariana Dancu

My sister and two great nieces.

 Captain Cooks Monument!!

 Whitby

 Happy dog walking days...