On Tuesday I took a call from a Dr AG at the Marsden to say that she had already spoken to AT and she was happy to go ahead and book me in for radiotherapy.
On Thursday I received another call from a different doctor to say they had a semblance of a plan and wanted to give me the heads up.
It goes something like this:-
Royal Marsden
Monday the 24th April , 10am PET scan
Tuesday 25th Clinic Appointment TBC
Wednesday 26th Tattoo/CT appointment TBC
Now even that is not completely plain sailing. If on the PET scan they find extra enlarged nodes( tumours) around the neck they won't go ahead with radiotherapy.
If there are a few other 'hotspot' areas in other places, providing they are small, they will still go ahead.
Obviously ideally I don't want any more nasty discoveries, but will just have to wait and see.
Now if they do give me radiotherapy, it could start as early as the second week of May ( possibly sooner) as the planning for the neck treatment is nowhere near as complicated as it was for my abdomen.
I do not know when it will begin , how long ( how many fractions ) I will have, this will depend on the size of the tumour and how much radiation they can carefully zap into me.
As and when it finishes I will start hormone replacement therapy.
IF, and of course that's a big IF, I cannot have radiotherapy they will start hormone replacement straight away, and fingers crossed it will halt the spread at least, it really would be asking too much for anything else.
I have a few minor issues to sort out, for instance Dr AS (Guy's Hospital)who I saw in London in the Autumn, is coming over to Jersey on the 24th for three days ... typical , I shall be in London! He discovered I had the BRCA 2 gene and I really need to meet up with him again.
The same thing happened in October, I had an appointment in Jersey when I was in London, but fortunately I was lucky enough to get a cancellation and see him at Guys, I'm hoping to do the same thing.
I have flights booked to go to East Midlands the bank holiday weekend in May to see lots of my family at our yearly reunion in Derbyshire. So things to re arrange and sort out there, I'm certainly not going to miss that!
Although that said I can't sort anything out until my plans re radiotherapy are firmed up, and I wont know until after the PET scan.
Onto less sombre news!
Yikes, this time next week Seaford Scullers will have rowed the equivalent of Sark to Jersey, I do hope I don't end up letting the side down, or embarrassing myself or the team- thanks to everyone for their support I'm pleased to say we have reached our target and have sponsorship of nearly £400!
Don't Quit
When things go wrong as they sometimes will; when the road you're trudging seems all uphill; when the funds are low and the debts are high and you want to smile but you have to sigh; when care is pressing you down a bit, rest, if you must but don't you quit.
Life is strange with it's twists and turns, as everyone of us sometimes learns, and many a failure turns about when they might have won had they stuck it out.
Don't give up though the pace seems slow, and you may succeed with another blow.
Success is failure turned inside out, God's hidden gift in the clouds of doubt.
And you never can tell how close you are, it may be near when it seems so far.
So stick to the fight when you're hardest hit.
Its when things seem worse that you must not quit.
Happy Easter to you all. Pleased you've got dates for London. Xxx
ReplyDeleteHappy Easter to all the Luce Family! Good to hear things are moving for you. So much to take in. Much love & hugs xxxxxx
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