Saturday, 22 April 2017

Saturday 22nd April 2017

Here is hoping you all had a good Easter break, I know I did. Lots of family time in our busy house and plenty of 'clearing', tidying up outside jobs as well as long dog walks, tennis matches and gardening works. :-) Plus many chunks of the day where I completely forgot I had cancer, now that's a real bonus.

I did receive a long letter in the post from Dr AG at the Marsden , basically going through exactly the conversation we had had a week or so before, but put in a very upbeat positive way.

Here is an extract...

'I explained that whilst we have seen that patients with BRCA mutations can be more sensitive to the myelosuppressive effects of chemotherapy, I have never seen anyone quite with the degree of myelopsuppression that you have had or has lasted so long. That raised the possibility that you could always have had counts that were below the normal range, even before starting treatment. This might explain why the count remains so suppressed. It is interesting to note that you have never had an admission to hospital with a neutropaenic infection; nor have you ever had any major problems with bruising or bleeding, despite the fact that you play a lot of contact sport.'

It goes on in more detail, but we all knew that nothing about me was ever 'normal' anyway.

Flying out on the 'red eye' on Monday morning, back around 8:30pm on Wednesday. My hope is that I can go ahead with radiotherapy but the PET scan will have the answers to that one.

Least I've managed to cajole my big brother to take me out for afternoon tea Monday and AB is escaping East Anglia (and her day of 'sport'- thats badminton and tennis, plus the odd digging session on the allotment and probably a swim....)to whizz down on the train for a day in the Big Smoke.

Lastly a big THANK YOU to those folks who sponsored the rowing team Seaford Scullers today, we finished our 30 kilometres in two hours four minutes. I was by far the slowest, therefore the others had to row twice as hard to cover for me, but it was a brilliant event. We raised £555.00 in total for Macmillan Jersey.

Oh, and happened to come second in the mixed teams... only beaten by a fitness club team!

Apparently in an earlier session (they run one at 9am and one at 1pm, about 25 teams in each) a team made up of OAPs rowed. All of them either had recovered from cancer or had it, the eldest member being 74, and they didnt come last!! #RESPECT

Wish I could post photos!!!












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