London Calling

An update over the last two days. The PET scan went OK yesterday , 'Katie' was a very lovely nurse and had a good chat with me beforehand. I wasn't a bit perturbed when she came to administer the radioactive dose ( carrying it I a lead box) and very quickly retreated to the safe distance of another room. 45 minutes later I had the scan, and whilst it's a bit uncomfortable and you have to remain absolutely still for 30 minutes ( I know ! Me ! Still ! ) it was ok.

Afterwards I rushed down to small cafe to eat lunch, having had to 'fast' for the previous 12 hours I was starving. The weather was cloudy but not too cold, so walked into the city to meet my bro , who treated me to an afternoon tea at Fortnum and Mason- and very nice it was too.

Today I started early to get to London Zoo when it opened at 10am, thought I would spend most of the day up there, and I'm glad I did, it was worth the visit and distracted me from the clinic appointment late afternoon.

Met a new registrar , who is also lovely , and in fact Dr AT came into see me as she wanted to say hello again😊. It seems as though the scan has showed up the tumour in my neck as a bright glow , in fact both ladies felt my neck and could feel it. We are going ahead with radiotherapy,although there was the beginning of a 'blush' of colour in a lymph node in my abdomen, they felt that they could deal with the neck tumour. They also said it was quite high up , but only a slight risk of damage to the top of one lung, my windpipe and the mass of nerves in my left shoulder.

I've another appointment tomorrow afternoon for a CT planning scan and also to be fitted with a 'shield' ( could also do with a sword and a horse but beggars can't be choosers. ) They need to find a way to keep the neck/ shoulder in exactly the same place every day, so by making a mould I wear at each treatment it makes the process easier.

Should take about a week to plan it all out, so in theory starting the treatment around 9th/10th May for about four weeks but nothing as yet confirmed.

Just looked at my health app on my phone and have done 19,972 steps today , that's a fair amount of walking, and not having slept very well at all last night ( a little anxious!) I'll be in bed early tonight!




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