From our political correspondent

Did our reader know that we have the builders "in"? I'm not sure if it's been mentioned. Anyway, as everyone will know by now, we don't do things by halves, so (as if there isn't anything going on at home at the moment) we have finally been getting on with converting our old potato loft into a one bedroom flat. "Who's that for?" I can hear you ask...and it's a good question. Let's just say that, at the moment, it's still out for an official decision sometime later this year.

I digress. We have builders on site. The scaffolders have been....the roofers have been (and gone) and we are now, from an appearance point of view, back where we started. We have a smart new roof...and work inside is underway. It was time to get a portaloo for outside. I made some calls and one arrived very promptly. I was happy....but not as happy (apparently) as my builders. "It's an event toilet" they told me. "What?" I replied. It transpired that what we have is no standard builders portaloo.....it's a proper fully specked out version, with all the trimmings. Proper soap, and towels, and probably shaving points and after shave I wouldn't be surprised.....and there was me thinking they were all alike! Anyway, the builders are well made up....i'll probably find they now spend inordinate amounts of time in there! However, I did point out that every day at Seaford is an "event" so they shouldn't be surprised.

There is a reason that I know that every day is an "event".

Recently Jill has moaned a lot when she's been tired....and my standard excuse has always been that "you're tired because we haven't had a "normal" day". There's always something that has happened...been to hospital,more Hospice, or been out, or had visitors, or something. A normal day for me (well, for Jill actually) would be just to spend time getting up, have breakfast, maybe potter in the kitchen, lunch, sleep, potter, rest, supper, rest, potter and finally bed......just a standard day. The point is that, when I actually stood back and analysed it, normal days are very few and far between...indeed, very Abnormal. So, most days contain an "event" of some description....and maybe our events portaloo is pretty apt.

That's Steve's piece, and following on from the posh loo saga, some of my family think it's a very good idea that in my worsening health state I take note of what they tell me and 'get a commode' .Only useful at night when if I sleep downstairs and need the toilet it's a bit of a trek with oxygen in tow to navigate my way, and then should anything go awry no one would hear my pleas for help .

I have resisted so far, and have taken to sleeping back upstairs to solve the problem (bathroom much closer, shouting distance!) and give Steve more earache, even though he gets enough of it in the daylight hours.

Of course I see the solution now, I'll just drag our new portaloo in and problem solved, the builders can have the commode?

Jill's Drug Chart

Finished antibiotics!
No more Naproxen either.
Two doses of methadone daily. ( cough suppressant )
Morphine as and when I need it ( helps with breathing ? More like knocks me out!)= peace for family.
Regular paracetamol usage, ( general pain relief)
Probiotic ( lines the stomach, encourages good bacteria )
Oh, and as from yesterday I've been put on steroids , 10 days course.
Seems as if they will cover a multitude of issues, bowel being the major one, but maybe also give me a bit more energy, mood a little lighter and possibly even to help shrink a few tumours.

It's got to the stage where as long as I know, what they are giving me and why, and it helps with my quality of life ( theirs and mine main aim) then I accept, but it's been jolly hard to take such a lot of strong drugs when I thought Nurofen three days running was excessive.... ( let's not even mention CHEMO)

I'm still trying to work on my diet, and include protein, my albumin levels are very low, hence the water filled tree trunks that are called legs which are still suffering badly. Forti juice drinks and calgon shots consumed daily, but I need a more balanced diet for the gut to work properly, however I have very, little appetite , my lack of mobility and constant feeling of fullness in my extended stomach doesn't help the cause .

Once again it's all about me...

Steve's drug chart

Antihistamines
Antibiotics ( plus after docs visit again today , a further weeks supply , as its seems his arm hasn't got a lot better and he has an infection of some sort.
Told he should have his arm in a sling and rest it. I quote " As if that's going to happen " unquote.

The rest of the tribe? The two that are married and wear the uniforms are 'saving lives' on a daily basis. The eldest is designing software to get people more organised and make their lives simpler and more streamlined ( or something like that) . The salty, sun baked one is flat out providing a huge service to holiday makers and locals alike ( as well as working on his tan and paddle board skills) and the youngest spends 'some' time at work, or is at home being bossed around by me.

The two four legged 'girls', spend lots of their day confused, nothing seems to have been 'normal' in their lives for ages. I am saddened that Beanie particularly is wary around me, doesn't like the oxygen tubes, or even the fact I probably 'smell' differently.

I also can't bend over very well to give them proper cuddles, and have not 'walked' anywhere in over a fortnight . Think I may have to succumb to being in that wheelchair that I know the family have hidden in the shed ready for my use ..... At least I could maybe use it as a racing chariot or even 'pimp' it up a little ? Harness the dogs, off I go.....







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