Friday 19th September

I usually keep well out of politics, but on this occasion I would just like to mention two things. Firstly a big congratulations to my husband, I am very pleased that he is able to continue all the good work he has done not only in the parish of Sf Martin but for Jersey as a whole. ( and for TH for nominating him, we heard the speech as our Tom recorded it on his phone for us!)
Secondly I am relieved that Scotland has voted No, and we can all stay together, although there will be big changes to come I'm sure, but that's not a bad thing.

Ok, now on to more light hearted matters...

I still am wearing the incredibly sexy coffee coloured full leg support stockings, day and night ( yes I do wash them) and yes they are very uncomfortable and hot.
I have to wear baggy clothes as nothing fits my 'Mr Blobby' body, still lugging about litres of fluid, mostly in my abdomen but also around my legs and backside.. Pretty...
I am however feeling much better in myself. Generally my warped sense of humour has returned, and I am 'nagging' Steve on a regular basis.
My painkillers have been reduced to one tablet, with a top up of a morphine based liquid if I need..
My eating has improved, although my protein ( albumen) is still very low, I am on a high protein no fat diet and will be for sometime. From what I understand, and in simplified form, I need protein in my cells for the Kyle ( lymph fluid) to disperse through a form of osmosis, and as one of the functions of the Kyle is to transport ' fat' etc around the body, I am trying to eliminate the fat so it has less work to do, and stop it going into overdrive... ( hope no nurses/doctors read this it's probably all incorrect!!)
Aside for all this my blood pressure is till very low, 97 over 63, on a good day I can get it over 100, but rarely! Luckily I feel fine, not dizzy at all so not quite sure why it's misbehaving.

I am posting this from hospital this morning, before we begin our journey back to Jersey, apparently the doctors from oncology have been in contact with each other, I have a six week 'window' post op before I need to start chemo. As the Kyle is still causing me problems I probably won't start chemo next week, but certainly the week after for sure. This will be probably six sessions but not yet finalised the drugs that will be used and how often they will be administered.... I'm so looking forward to that! More injections too, as I have to continue with the tinzaparin once a day, my scarecrow arms .....

....Steve taking over as the consultant has arrived....

I can't believe it....I have just spent twenty minutes writing an up date, and then the wrong button came up and all my food work disappeared AGAIN. I think I can say officially that I am an idiot....why do I do it?....trying to move too quickly. Anyway, here I go yet again, trying to relay some thoughts.

We're about to leave in a minute...nurses keep popping in...I really think they are only doing it to make sure that we are actually leaving.....seriously though, everyone here has been fantastic, and I mean everyone....consultants,moistens, nurses, cleaners, food people...everyone....what a fantastic place this is...it's just a real shame that we have to experience it "from the wrong end".... We have all the drugs packed...and a long letter explaining why we have them....I think all,the paperwork is done now...discharge forms...and other bits and pieces to full in before we leave...

So that's it for now folks....I'm going to save a post this...with luck the next time we post will be from Seaford...although I have to say that I'm a little concerned abut Gatwick....Jill is fit enough to be talking about shopping...and that's a worry for me and my bank manager....if she drops too many hints than I may decide that she news a wheelchair again.....at least that would be a good way of immobilising her for an hour or so....just enough time to get through duty free!!

Okay...we're off...cases finally packed...downs to the Fulham Road to hail a taxi...Victoria Station...and then the Express to the airport....an "easy" experience it's easy jet .....and then a lift back home form the wilds of St. Peter... Speak later everyone...wish us luck.



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