short update post...

Our reader will be relieved to know that this will be a shortish post this evening. Despite best intentions, it's now late, and in the next half hour we (me and the nurses) are going to have to try to get an asleep Jilly into the bathroom, into her jimjams and back into bed. The prospect of that is not filling me with enthusiasm I'm afraid. This will be the first evening that we will have had to wake her up to get ready for bed. I just hope she's not as grumpy as I am when someone wakes me up before heading for bed...having said that, I was asleep on the comfy chair myself half an hour ago.

I guess we've had an average day, all things considered. Some good points and some not so good. High spots would be "party" of close family that got together for the Air Display. We had all arrived by 2:30 and made our way outside on to the grass. Jill was wheelchaired...and coped really well. Immediately after we had a good meeting with our two doctors NB and JduF. We've decided to change some more drugs around, and add some more ones to aid sleep at night. We're also going to take additional oral morphine at a more regular interval. I'm not sure if the thought of those drugs has already starting to work, but Jilly has certainly been "zonko" for the past hour.... she's tired, and I guess her big day has just got the better of her.

Low spots have been a semi panic attack at a point in the day when she was actually expecting to relax and sleep. Her mind was saying relax...but her body was going in the opposite direction. She didn't enjoy that much and was very frustrated...especially as we ended up calling nurses to deliver even more drugs. The other low spot (for Jill) was the fact that she needed help to get up out of the wheelchair this evening. She was determined (despite my protestation) to "do it herself"....and got very upset when she couldn't. Why am I surprised? She is still, even in her sickness, trying to be completely independent. She had a "right rocket" from me after...mainly because she didn't want (or wouldn't accept) help. Consequently she got really exhausted, and that then makes things even more difficult. hey....that's Jilly for you.

We're in a right royal pickle now. It's nearly half past eleven and Jill is very tired and asleep on the bed....she's also just been given her night time drugs....I can see that getting her into the bathroom now is going to be nigh on impossible. The nurse has also just come in and, between the two of us, we're going to change her leg bandages. I'll get back to our reader in a minute.

Right, bandages done.....but Jilly still asleep I'm afraid. We are going to leave her in peace to sleep. When she wakes up and "feels the need" for whatever she can buzz the nurse and request some assistance. I'm heading home for some zzzzs of my own.

The only semi-amusing story of the day concerned chairs yet again. I was sat on that chair, the one that lifts you up automatically. At some random point, and for some inexplicable reason, the chair started to lift. I looked around to find the control box....the chair was about to get to a point where it would start to tip over the table in front of it...yes, the table with the drinks on etc. I was within a second of having a very embarrassing moment when I noticed what was wrong...I had somehow moved to a point where I was sat on the control box. Lesson learned.

More tomorrow....